As a charity, the Ewing’s Sarcoma Research Trust is dedicated to funding research, so provides no support services as such. Many of our trustees are patients or relatives of patients, so will be more than willing to talk to anyone who is recently diagnosed, or their family members.
Matt’s mother, Lesley has written an article about dealing with a diagnosis from the perspective of a parent. To read it, please click here.
This page exists to point people in the direction of existing charities who provide support in many ways across the country. We hope that either through our personal experiences, or from the list of other charities, we can help you come to terms with diagnosis and treatment.
One of the leading charities for children & young adults with cancer is CLIC Sargent. They provide social workers, youth workers, clinical nurse specialists as well as many other services to help patients and families throughout treatment.
Practical solutions they can provide might be a “home from home” loacted near to a treatment centre to prevent families spending long periods apart, or even a short break at a holiday home between treatments.
To find out more about CLIC and what they can provide, click here.
Bone Cancer Research Trust
Bone Cancer Research Trust is a charity formed by those who have suffered from, or have had a family member suffer from, bone cancer. They are currently developing their support functions, but at present can only provide emotional support and information.
The real benefit of contacting BCRT for support is that everyone connected with the charity has a very personal link to this type of cancer, and really can talk from experience.
To find out more about the BCRT, and to contact them directly, please click here.
Macmillan Cancer Support
Often the first name people think of when it comes to cancer charities, Macmillan is a well-established charity for all sufferers. Macmillan provide a range of services, from information through to emotional, social and psychological support, and even fund nurses.
To find out more about Macmillan Cancer Support, click here.
Teenage Cancer Trust
The Teenage Cancer Trust are focused on improving the facilities available to teenagers in hospital. Often, teenagers struggle with being very alone on either an adult or children’s ward, when their needs are very different from their fellow patients. TCT have funded the construction of 16 specialist units for teenagers, and are hoping to increase this number in the future.
They also have a support network on their website, mainly for patients, but also provide a family support network and education services.
To visit their website, click here.